Workshop 29

Ethics, data and privacy protection: who will take responsibility and how we proceed to a common framework for IT-AHA in Europe? 

Theme 3
Wednesday 25 September 16:00-17:30
Room: Suecia

New ICT solutions aim to take care of people who are older, sometimes fragile and most of the time not tech-savvy. They make use of people’s data to improve the technology in general and, on a personal level, to keep an eye on the users’ wellbeing. We expect they are keeping them ‘safe’ when collecting and analyzing their data. Because, caring for people – who are mostly unaware of the ’worth’ of their information – is also taking responsibility for their safety by protecting their data and privacy.

However, technology doesn’t police itself. Several technologies, namely in the health sector, are well framed in terms of data protection, ethical concerns and privacy, but many others are flourishing with no framework other than the GDPR and no adequate supervision. How can we make European policy to keep people using non-medical technology solutions ‘safe’ and raise their awareness concerning data and privacy so they can make ‘safe’ decisions themselves? Not to scare anyone, but to understand how the common citizen might be unaware of what’s coming down the pipeline or already is in their house or work.

The goal of this workshop is to raise discussion on how we can make sure that older – mostly not tech-savvy – people who use non-medical technology solutions are ‘safe’ where it concerns to their data and privacy. Policy making at a European level on the ethical framework is one way to protect them, but it is also essential to raise their awareness, so they are able to make ‘safe’ choices themselves. How to achieve these two sides of the same medallion is our objective.

Chair:
Carina Dantas (Cáritas Coimbra)

Speakers/Experts:
Ellen Steenmeijer (Virtask)
Stephanie Koenderink (De Parabool)
Edith Birrer and Daniel Bolliger (iHomeLab)
Sonja Hansen (Aarhus Municipality)
Peter Mayer (Technical University Vienna)
Viviane van Dollen (SHD)
Ana Jegundo (Cáritas Coimbra)